Living with Multiple Sclerosis – Diagnosing MS

July 9th, 2010

I shot this video on my birthday! I wanted to talk about the things you need to do in order to get a diagnosis.

 Mail this post

Nutrition and Multiple Sclerosis (MS) Part 2/5

July 7th, 2010

DIRECT-MS (www.direct-ms.org ) is a federally registered charity which was founded in early 1998 by families affected by MS. The main goal of the charity is to fund research that directly tests the role of nutritional factors in MS. The charity was established because the research efforts of the large MS charities such as Multiple Sclerosis Society of Canada (MSSC) and the National Multiple Sclerosis Society (NMSS) are focused on long term research such as genetics and molecular biology. Such topics are only very indirectly related to MS cause and will not provide persons with MS with a practical therapy for slowing or halting MS progression for decades, if ever. Thus little research is being done which will help persons with MS in the near future (5-10 years) and essentially nothing is being done in terms of nutritional factors and MS. Such a situation is not in the best interests of persons with MS and DIRECT-MS hopes to rectify this very unfortunate and potentially very harmful circumstance. nutritional recommendations summary www.direct-ms.org Other interesting related presentations (high resolution slides)can be found at: www.direct-ms.org And also Dr Cordain’s web site: www.thepaleodiet.com There is also a very interesting interview with Dr Loren Cordain by Robert Crayhon: chetday.com

 Mail this post

Living with Multiple Sclerosis – My first Speech!

July 7th, 2010

As a patient advocate for Tysabri, I had my first speech on behalf of Biogen IDEC!

 Mail this post

Healthy Body Healthy Mind – Living With Multiple Sclerosis (PART #01)

July 3rd, 2010

Living with Multiple Sclerosis and the advanced treatments for this disease.

 Mail this post

Living with Multiple Sclerosis – 2 weeks after Tysabri

July 1st, 2010

At this point I was so emotional! The steroids were leaving my body.

 Mail this post

New hope for treating multiple sclerosis

June 15th, 2010

Relatively new drugs now help some patients, but not others, with the most common form of multiple sclerosis. That may be because patients with the same symptoms experience different types of inflammation, suggests a new study in animals from the University of Michigan. If the differences are found in people, future treatments may be tailored to specific subtypes of the disease. www2.med.umich.edu

 Mail this post

5 Months on Tysabri For Multiple Sclerosis

August 31st, 2010

Here is what one patient reports about her Tysabri treatments.


More Multiple Sclerosis Help

 Mail this post

Multiple Sclerosis 5K Fundraising Run

August 22nd, 2010

A community comes together to help raise funds and support a newly diagnosed multiple sclerosis patient.

Early Saturday morning 43 local runners gathered at the Rexburg Golf Course to support a local community member whose sister-in-law suffers from Multiple Sclerosis. Reporter Brian Johnson fronted the cold and got the story. After watching the story, if you would like to help support the Sullivans you can contact them at jewelsgrimm@yahoo.com.

More Multiple Sclerosis Help

     Mail this post

    Occupational Therapy and Multiple Sclerosis

    August 22nd, 2010

    Occupational therapy remedies should be explored by multiple sclerosis patients. Here is Gary’s story of how it helped him.

    Occupational therapy can help people with multiple sclerosis to live independently

    More Multiple Sclerosis Help

     Mail this post

    Nutrition and Multiple Sclerosis (MS) Part 3/5

    August 12th, 2010

    There have been theories that diet and nutrition could play a part in helping MS patients.

    DIRECT-MS (www.direct-ms.org ) is a federally registered charity which was founded in early 1998 by families affected by MS. The main goal of the charity is to fund research that directly tests the role of nutritional factors in MS. The charity was established because the research efforts of the large MS charities such as Multiple Sclerosis Society of Canada (MSSC) and the National Multiple Sclerosis Society (NMSS) are focused on long term research such as genetics and molecular biology. Such topics are only very indirectly related to MS cause and will not provide persons with MS with a practical therapy for slowing or halting MS progression for decades, if ever. Thus little research is being done which will help persons with MS in the near future (5-10 years) and essentially nothing is being done in terms of nutritional factors and MS. Such a situation is not in the best interests of persons with MS and DIRECT-MS hopes to rectify this very unfortunate and potentially very harmful circumstance. nutritional recommendations summary www.direct-ms.org Other interesting related presentations (high resolution slides)can be found at: www.direct-ms.org And also Dr Cordain’s web site: www.thepaleodiet.com There is also a very interesting interview with Dr Loren Cordain by Robert Crayhon: chetday.com


    More Multiple Sclerosis Help

     Mail this post

    Multiple Sclerosis, What To Expect. Part 3 of 4. How I was Diagnosed, Fiasco, My Symptoms.

    August 8th, 2010

    How I was Diagnosed, Fiasco, My Symptoms.


    More Multiple Sclerosis Help

     Mail this post

    Ryan Star – Brand New Day (studio version)

    August 8th, 2010

    Lyrics: I’ve stayed in one place for too long Gotta get on the run again I saw the one thing that I want Hell bent, get outta bed I’m throwing rocks at your window You’re tying the bed sheets together They say that we’re dreaming too big I say this town’s too small Dream Send me a sign Turn back the clock Give me some time I need to break out And make a new name Let’s open our eyes To the brand new day It’s a brand new day I’ve taken hits like a brawler But I’m getting back up again And from the moment I saw her I was hell bent with heaven sent I’m throwing rocks at your window We’re leaving this place together They say that we’re flying too high Well get used to looking up Dream Send me a sign Turn back the clock Give me some time I need to break out And make a new name Let’s open our eyes To the brand new day It’s a brand new day It’s a brand new day I know it’s a brand new day Come on to the brand new day I know it’s a brand new day Dream Send me a sign Turn back the clock Give me some time I need to break out And make a new name Let’s open our eyes To the brand new day It’s a brand new day I noticed there wasn’t a studio version available on YouTube so I uploaded mine. If this gets copyrighted please pm ‘FailAtGame’ on YouTube.


    More Multiple Sclerosis Help

     Mail this post

    Part 1 of 2 Living with Multiple Sclerosis

    August 8th, 2010

    Part 1 of 2 Shelly McFarland-Johnson talks about living with Multiple Sclerosis and how it is affecting her life.


    More Multiple Sclerosis Help

     Mail this post

    Multiple Sclerosis Progression

    August 6th, 2010

    This video clip explains how multiple sclerosis progresses. For videos and more check out www.emedtv.com


    More Multiple Sclerosis Help

     Mail this post

    Living with Multiple Sclerosis – getting steroids Part 3

    August 6th, 2010

    It’s my last night in the hospital and Joel helped me walk down the hallway.


    More Multiple Sclerosis Help

       Mail this post